It is with great sorrow that we said goodbye to our beloved director, Caroline Robinson Foster, at her Celebration of Life held on Monday, July 14th.  Please see our activities page for Caroline's extended obituary. 


Celebrating Success: Katie Yeend

Katie Yeend has been a client of the Alabama Epilepsy Foundation for many years, she is now hitting her own stride with honors richly deserved and won outright in  a nationwide competition we thought you would like to read some Good News. CONGRATS Katie

Katie is still attending Faulkner State Community College and will be a Sophomore Jan. 2015, majoring in Early Childhoo Education and a minor in Sociology; she hopes to teach K-3 grades in Special Education. This summer she was able to be a Volunteer Counselor at Victory Junction in Randleman, NC.

She also is one of 30 nationwide to win a $5,000.00 scholarship through 2014 UCB Family Epilepsy Scholarship. September 15, 2014 she will alsoattend a 2 week CNA Certification.

David Toenes, Director Client Services, Epilepsy Foundation of Alabama

 


 

                                         UAB CANNABIDIOL PROGRAM

 

UAB will create a cannabidiol program for research and treatment of debilitating seizures in response to the enactment of Carly’s Law by the Alabama legislature and Governor Bentley.

The Cannabidiol Program will be established by the UAB Department of Neurology, which includes physicians practicing at the Kirklin  Clinic and UAB Hospital as well as at Children’s of Alabama.  The co-directors will be Jerzy P. Szaflarski, MD. Ph.D., Martina Bebin, M.D., M.P.A, and Leon Dure, M..D

The program must meet regulatory requirements of the Food and Drug Administration, The Drug Enforcement Administration and the university’s Institutional Review Board; approvals must be obtained be fore the program can be launched. This process could take six months or longer.

Patients seeking an appointment with the UAB cannabidiol program  call

205-975-8883 or email cbd@uabmc.edu for more information.


Epilepsy Awareness Initiatives

I am a recruitment specialist with Snow Companies, a healthcare communications company. We are working with Eisai, Inc. in the creation of patient and caregiver education initiatives for the epilepsy community.  

As part of the development of these progams and services , Eisai, Inc. is hoping to identify people living with partial onset seizures and their journey with managing treatment.

We would appreciate your help in identifying patients and caregivers who may be willing to participate in potential initiatives aimed at raising awareness of epilepsy. Initiatives may include public speaking opportunities, omline programs, or participation in photo or video projects.

In order to maintain patient privacy, we ask that individuals self-nominate by email Eisai@snow-companies.com or call 1-855-578-5348 for more information.

We appreciate any help you be able to offer in identifying interested individuals, understanding that not all who may be interested will be eligible to participate.

Heather Morse, RPh, Advocacy and Recruitment Specialist, hmorse@snow-companies.com

If you have any questions email dtoenes@efala.org or call him at 251-341-0170.     

 

Epilepsy Awareness Club in Madison, AL

Gena Dalton gena.dalton@gmail.com  and Michelle Lange, mlangew3@gmail.com are the contacts in Madison , AL.



CHANGES AHEAD FOR CLIENTS

Beginning in November, Epilepsy Awareness Month, the Epilepsy Foundation of Alabama will initiate statewide efforts to broaden the information base and awareness of seizure disorders and epilepsy throughout Alabama.

 All outreach groups will be" Epilepsy Awareness Clubs" with the new mission of bringing the latest information on seizure diagnosis and management. At the same time we will bring more uniformity in our delivery of services statewide through these clubs will serve clients with emphasis on the positives, such as belonging and awareness.

The change will be more than cosmetic as the roll of the Awareness Clubs unfolds. If you are interested in bringing a posotive sound and participating in our efforts contact David A. Toenes, Director of Client Services at dtoenes@efala.org or call David at 1-800-626-1582.

Epilepsy Awareness Clubs   

             The Epilepsy Awareness Clubs throughout the state will provide a new,

up to date outreach capacity designed to meet the needs of the growing population

Of Persons With Epilepsy (PWE). Each will interlock with the other through the Epilepsy Foundation of Alabama offices.

The function of the EWC is to provide a homogenous group of individuals with epilepsy seeking additional information on treatment, medications, and the newest treatment modalities for epilepsy. Additionally, the Awareness clubs will serve as established meeting groups and outreach engines.

 

The initial sites for the Epilepsy Awareness Sites are:

 

Mobile (Andulsia/Brewton), Montgomery, Dothan, Birmingham, and Huntsville

http://www.epilepsy.com/celebrating-success/ef-alabama


 

                                                   VOLUNTEERS NEEDED !!!!!

The Epilepsy Foundation of Alabama is organizing a Volunteer Group.  This group will assist the foundation in all areas of operation to include, planning and organizing events, training in the foundation’s educational programs  i.e. “Managing Students with Seizures,” Training for School Nurses, Law Enforcement Initiative,  for presentation to community groups, schools, businesses etc.

Seizures affect 1 in every 100 individuals and is a very misunderstood disorder.  It is the leading neurological disorder in children, and the third leading neurological disorder in adults, third only to strokes and alzheimers.

For information call (251)341-0170 or website www.epilepsyfoundationalabama.org

 


                  

THE MISSION:

The Epilepsy Foundation of Alabama is a voluntary, nonprofit organization dedicated to enhancing the quality of life for individuals affected by epilepsy in 67 counties across Alabama.

A nonprofit, 501(c)(3) organization, the Epilepsy Foundation of Alabama has as its mission to educate and support individuals with epilepsy and their families, to increase awareness in the general community and to facilitate prevention and management of epilepsy. This includes providing services and programs for people with epilepsy and their families; educating and increasing awareness about epilepsy; providing leadership in advocacy for epilepsy issues and collaborating with other community resources in support of the mission of the people with seizure disorders.


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Institute of Medicine

Epilepsy Across the Spectrum Quiz

Test your knowledge about epilepsy with this 5 question quiz.


 


Epilepsy Foundation Alabama
Office Park 3, 273 Azalea Rd #310
Mobile, AL, 36609-1970
(251) 341-0170
(800) 626-1582

 

  

 
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